Jesy Nelson

A mother of twins diagnosed with Spinal Muscular Atrophy navigates her new reality while fighting to change UK newborn screening laws.

When Jesy Nelson's twin daughters were diagnosed with SMA type 1, her whole world changed overnight. This raw and powerful documentary follows Jesy as she comes to terms with what the diagnosis means for her girls, adapts to the everyday challenges of their conditions, and finds her footing as a single mother after the break up of her relationship. But this is far more than a personal story. Jesy channels her experience into a campaign to change how the UK screens newborns for the disease. It's a portrait of motherhood, resilience and the fierce determination that comes from knowing that a simple change in the system can save lives.